When a young person with disabilities approaches the age of 18, the family is often told that they must seek conservatorship (guardianship) or they will no longer be able to obtain information or provide guidance and support in the areas of healthcare, education and other services. While some people with disabilities may need assistance with understanding information, researching and weighing options and making decisions, conservatorship is the most restrictive option available to support these issues. Because the restrictions of a conservatorship are rarely altered or reversed, it locks people into a long term and often permanent status of other people making binding decisions for them. Families are often unaware of potential complications of conservatorship or the alternatives available to support their loved ones. The following materials present an overview of concerns about the current conservatorship process:

Supported Decision-Making:
Protecting Rights; Ensuring Choices

Supported Decision-Making:
5 Reasons to Re-Think Guardianship

Print Materials:

Introduction to supported decision-making

Supported decision making (SDM) allows people to obtain guidance and support without relinquishing their legal right to make decisions about their lives. Using supported decision-making, a person with a disability chooses a person or a team of trusted people to help understand, make, and communicate their decisions. The person may rely heavily on their supporters when making decisions, but the decisions ultimately remain within their control. Supported decision-making is a very flexible process; as the person gains experience, the areas in which they seek support and the people who they choose to support them may change. The following materials provide an overview of the supported decision-making process:

Supported Decision-Making:
What Supported Decision-Making is
and why it Matters

Supported decision-making: Getting started

Supported decision-making is not a difficult process and is often informally practiced by families and our service system. Formalizing supported decision-making is a relatively new process.  The following resources are helpful to help get started with exploring a formal supported decision-making process.


Using Supported Decision-Making:
A Step by Step Guide

Supported Decision Making

Supported decision-making agreement and related tools

Supported decision-making may include the development of a written statement or formal contract that is written in plain language and is explained using the method the person receiving support understands most clearly.  The agreement specifies the people who have been chosen as supporters, describes the role of the supporters and the areas that they have been asked to support with. Having a contract can be useful to clarify the roles of the supporters and is helpful if the role of the supporter(s) is ever challenged by school staff, medical provider or other professionals.  There are a range of established tools, ranging from HIPAA releases, power of attorneys, IPPs, and many others, that are frequently used within the supported decision- making model.

National supported decision-making resources

Several states have supported decision-making legislation.  While legislation is not required to use supported decision-making where you live, it is helpful to be aware that the model has been legally recognized. 

Support for CEDD's Supported Decision Making Project, including development of this webpage,
was provided by the WITH Foundation.