Randi Jenssen Hagerman, who has devoted her life to relieving the suffering of children and families affected by fragile X syndrome and related conditions worldwide through patient care, research and teaching, will receive a Distinguished Scholarly Public Service Award from the UC Davis Academic Senate.
The medical director of the UC Davis MIND Institute, Hagerman is one of the world’s leading investigators into the disorders that include fragile X syndrome, the most common heritable cause of intellectual disability and autism. She has lobbied the United States Congress to increase funding for fragile X research and is a founder of the National Fragile X Foundation.
Fragile X-related disorders include fragile X syndrome; fragile X-associated tremor/ataxia syndrome (FXTAS), an age-related movement disorder that affects older men; and fragile X-associated primary ovarian insufficiency.
Hagerman treats patients with these conditions from throughout the country and the world, and is an active and vocal champion for greater funding for research and treatment. She has established clinics and mentored physicians and researchers on virtually every continent. Hagerman currently is establishing a treatment site at a fragile X hotspot in Colombia.
“We’re forging relationships and developing diagnostic and treatment studies with many centers internationally to advance therapies for the tens of thousands of people who suffer from fragile X disorders worldwide,” Hagerman said. “We want families everywhere to benefit from the MIND Institute’s remarkable neurodevelopmental expertise in both fragile X and in autism.”
The award from the Academic Senate was announced April 29. Hagerman will be recognized at a ceremony on May 13.
“I am humbled by this award and truly grateful for the recognition of the UC Davis Academic Senate for our international efforts in fragile X diagnosis and treatment,” Hagerman said. “My efforts represent a multidisciplinary team of wonderful clinicians and scientists who make our fragile X work truly outstanding and dramatically helpful for the patients and the families that we serve.”