Fragile X Research and Treatment Center: UC Davis MIND Institute

Program Director

Randi Hagerman, M.D.

Randi Hagerman, M.D., is Medical Director of the MIND Institute, and Director of the Fragile X Research and Treatment Center at the MIND Institute.

Fragile X Research Studies

We have a wide variety of ongoing research studies involving fragile X syndrome and FXTAS.

Click here for a description of our current research studies and their enrollment information:

Current Research (PDF)

Contact Us

If you have questions, or would like to learn more about scheduling an appointment at the Fragile X Research and Treatment Center, please contact Louise Gane, M.S., Clinical Specialist:

Phone: (916) 703-0238

Email: louise.gane@ucdmc.ucdavis.edu

Resources & Links

Click here for more information and resources about fragile X syndrome:

Fragile X Resources

Uno de cada 2.500 hombres y una de cada 8000 mujeres tienen en España el Síndrome X Frágil, una enfermedad de las denominadas minoritarias que es la causa principal de retraso mental familiar, y que por ahora no tiene cura, aunque la investigación. Entrevista con Javier Pagonabarraga, neurólogo de la unidad de trastornos del movimiento del servicio de neurología del Hospital de Sant Pau de Barcelona. ver más...

Fragile X Research and Treatment Center

The MIND Institute established the Fragile X Research and Treatment Center directed by Randi Hagerman, M.D., in 2001. In 2003, the National Institutes of Child Health and Development (NICHD) provided funding for the center in collaboration with the University of Washington in Seattle. Our Fragile X Research and Treatment Center includes research funded by NICHD, NINDS and private donors. Our clinical evaluations and treatments of patients with fragile X is an important component of our center and our clinical experience guides our research. Our center involves the expertise of professionals in molecular biology, including Drs. Paul Hagerman and Flora Tassone, and the close interaction of clinicians and molecular biologists had lead to important advances in our understanding of fragile X and treatment.

An interdisciplinary staff and faculty are involved with the Fragile X Research and Treatment Center, including specialists in pediatrics, molecular genetics, psychiatry, psychology, neurology, genetic counseling, speech and language pathology, occupational therapy, neurobiology, pathology and social work. We have evaluated children and adults with fragile X syndrome and also carriers with the premutation from locations regionally, nationally and internationally. Most families that participate in an evaluation at our center are involved with both clinical work and research protocols.