Fragile X Research and Treatment Center
The MIND Institute established the Fragile X Research and Treatment Center directed by Randi Hagerman, M.D., in 2001. In 2003, the National Institutes of Child Health and Development (NICHD) provided funding for the center in collaboration with the University of Washington in Seattle. Our Fragile X Research and Treatment Center includes research funded by NICHD, NINDS and private donors. Our clinical evaluations and treatments of patients with fragile X is an important component of our center and our clinical experience guides our research. Our center involves the expertise of professionals in molecular biology, including Drs. Paul Hagerman and Flora Tassone, and the close interaction of clinicians and molecular biologists had lead to important advances in our understanding of fragile X and treatment.
An interdisciplinary staff and faculty are involved with the Fragile X Research and Treatment Center, including specialists in pediatrics, molecular genetics, psychiatry, psychology, neurology, genetic counseling, speech and language pathology, occupational therapy, neurobiology, pathology and social work. We have evaluated children and adults with fragile X syndrome and also carriers with the premutation from locations regionally, nationally and internationally. Most families that participate in an evaluation at our center are involved with both clinical work and research protocols.
We provide comprehensive clinical services, including psychological testing, genetic counseling, and medical assessment. Some of these services may be provided as part of ongoing research studies and/or clinical trials.
We have a wide variety of ongoing research studies involving fragile X syndrome and FXTAS.