Clinical Evaluations in our 22q Healthy Minds Clinic
Information for families with children affected by chromosome 22q11.2 deletion syndrome
An important part of your visit to the MIND Institute is the opportunity for your child to have a detailed clinical evaluation completed by a developmental and behavioral pediatrician, licensed psychologist with expertise in developmental clinical neuropsychology and, where appropriate, child and adolescent psychiatrist. Each of these clinical experts in 22q11.2DS (VCFS/DiGeorge) will complete a best practices evaluation, consult together as an interdisciplinary team, talk with you about the results, provide individualized recommendations for support and intervention, and prepare a written report that will be delivered to you. They also may be available for some limited supportive follow-up.
Recently, grants from the Dempster Foundation and numerous private donations have enabled us to establish the “22q Healthy Minds Clinic” for clinical assessments on a case-by-case basis. We have had some success seeking authorization and payment from health insurance and associated mental health carve-outs, and are now inviting families to contact us to see if their child is an appropriate candidate.
The first step towards a possible assessment appointment is to contact our Coordinator at firstname.lastname@example.org for information. Please put "22q Clinical Assessment" in the Subject Line. We will then assist you in the process of securing a referral (if appropriate) by providing information to help you follow the steps outlined here (PDF). To further assist you, we have provided a sheet with answers to Frequently Asked Questions about the Clinic appointments. It is available here (PDF).
If you would like to help us with donations to support and expand these critical services, please click here. In the box marked special instructions for this gift please write, "for 22q11.2DS activities/Dr. Tony Simon). You can also send a check to the MIND Institute directly and mark it “in support of 22q11.2DS activities/Dr. Tony Simon”.
Greater funding will enable us to establish a monthly clinic day for children of all ages, regardless of their eligibility for participation in our NIH-funded research. In the future, we also hope to offer telemedicine follow-ups with you and your child’s medical providers and educational team without anyone having to travel extensively.
Mail Correspondence to: Donor Form (PDF)
UC Davis MIND Institute
Attn: Health Sciences Development
4900 Broadway, Suite 1150
Sacramento, California 95820
UC Davis Health System is recognized as a tax-exempt, 501 (c)(3) public charity by the Internal Revenue Service. Your gift to the MIND Institute qualifies as a charitable deduction for federal tax purposes as permitted by law.