California Organizations

• California Department of Education Diagnostic Centers

  Provides services to special education students, their families, and education providers including assessment and technical assistance, professional development, and an Ask a Specialist discussion forum.

• California Health Incentives Improvement Project

  Works to remove barriers that limit or prevent the employment and self-sufficiency of persons with disabilities. The focus is on outreach, training research, policy analysis, and development.

• Medi-Cal

  Information about program, benefits, who qualifies and how to apply for Medi-Cal, the California state public health insurance program for low-income individuals.

• Center for Personal Assistance Services at the University of California, San Francisco

  Provides research, training, and technical assistance on issues related to personal assistance services.

• DDhealthinfo.org

  Designed to assist physicians and other healthcare providers in caring for persons with developmental disabilities. Also designed to support consumers and their families in making informed health care decisions. Includes medical care information for specific syndromes and related issues, health provider educational opportunities, speaking opportunities, publications, and links to other websites.

National Organizations

• Center for Disability Issues and the Health Professions (CDIHP)

  The mission of CDIHP is to enhance the education of health professionals and to improve access for people with disabilities to health, health education and health care services.

• Medical Home Portal

  Information and resources to help physicians and parents care for children and youth with special health care needs.

• National Early Childhood Transition Center (NECTC)

  Eamines factors that promote successful transitions between infant/toddler programs, preschool programs, and public school programs for young children with disabilities and their families. The primary objective of NECTC is to investigate and validate practices and strategies that enhance the early childhood transition process and support positive school outcomes for children with disabilities.

• Family Voices

  National grassroots organization that provides information and education about ways to ensure and improve family-centered health care for children and youth with disabilities and chronic conditions. Health Information and Communication Tools.

Health Information and Communication Tools

• Build your Own Care Notebook: National Center of Medical Home Initiatives for Children with Special Needs

  Designed to assist families in building care notebooks for their children with special needs. Families are encouraged to bring the Care Notebook to all medical appointments.

• Transition Workbook for Young Adults, Their Families, and Their Medical Providers

  Workbook for transition from pediatric to adult focused health care.

• Talking with Your Doctor and Other Heath Care Professionals

  Short video to teach young adults how to communicate with health care providers.

• Health Care Transitions

  Video to help young adults with chronic health conditions and their families transition from pediatric to adult health care.