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Interactive ELSI curriculum for primary care residents

Principal Investigator
PI Home Department
Source of Support
Dates
Total Cost
Michael S. Wilkes, M.D.
Vice Dean, Medical Education
NHGRI
09/2003 - 8/2006
$1,433,783

This three-year study proposes to develop, implement, and evaluate a Web-based curriculum on the ELSI related to genetics for primary care residents in internal medicine and pediatrics. In the intial phase we will build a Web-based curriculum on ELSI issues related to genetics with a series of case-based modules, emphasizing the integration of genetic concepts into primary care practice that guides residents to those conepts which build on established primary care practice, and those which represent novel approaches to care delivery. After development, our curriculum will be implemented with residents in pediatrics (University of California, Los Angeles & University of Washington, Seattle) and internal medicine (University of California, Davis & University of Washington, Seattle). Residents will complete ELSI-related, genetic-content case modules through self-directed study or in conjunction with scheduled teaching sessions. Each case module will focus on three domains of genetics: diagnosis of genetic disease; predictive genetic testing, and testing for reproductive decision-making. Learning objectives will include negotiating the interface between genetics and primary care; evaluating the utility of genetic information in different clinical situations; understanding the role of non-directive counseling; cultural issues and personal values; and the perspectives of bioethics, religion and law in the use of genetic information.

During the initital phase a team of researchers with expertise in medical education, genetics, technology, ethics, law, culture, communication, and educational evaluation was assembled from each of the three participating campuses. The team began to outline templates and identify specific modules that teach core content in a user-friendly manner. This work includes the development of content including case-writing, technology development, site implementation, and program evaluation plans.