Support Services
Cleft and Craniofacial helpful resources
The Cleft and Craniofacial Program has identified numerous support groups and Internet links that can be helpful for pediatric patients with cleft and craniofacial problems.
AboutFace USA
- Web site: http://www.aboutfaceusa.org/
- Tel: (888) 486-1209
- e-mail: AboutFaceUS@aol.com
About Face International
- Web site: http://www.aboutfaceinternational.org/
- Tel: (800) 665-3223
- e-mail: info@aboutfaceinternational.org
California Coalition of Cleft and Craniofacial Teams
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Web site: http://www.cleftteam.org/
Children's Craniofacial Association
- Web site: http://www.ccakids.com/
- Tel: (800) 535-3643
- e-mail: contactcca@ccakids.com
Cleft Lip & Palate Parent Support Group
- Sacramento, Calif.
- Contact: Gary Hori
- Tel: (916) 456-2814
Cleft Palate Foundation of America/CLEFTLINE
- Web site: http://www.cleftline.org/
- Tel: (800) 242-5338
- e-mail: info@cleftline.org
Craniofacial Foundation of America
- Web site: http://www.erlanger.org/craniofacial/found1.html
- Tel: (800) 418-3223
- e-mail: farmertm@erlanger.org
Forward Face
- Web site: http://www.forwardface.org
- Tel: (212) 684-5860
- e-mail: linda@forwardface.org (Linda Rosenbluth, executive director)
Genetic Alliance
- Web site: http://www.geneticalliance.org
- Tel: (202) 966-5557
- e-mail: info@geneticalliance.org
Let's Face It
- Web site: http://www.faceit.org
- Tel: (360) 676-7325
- e-mail: letsfaceit@faceit.org
SMILES
- Web site: http://www.cleft.org
- e-mail: smiles@cleft.org
Wide Smiles
- Web site: http:// www.widesmiles.org
- Tel: (209) 942-2812
- e-mail: josmiles@yahoo.com
22qandyou Newsletter
- Web site: www.cbil.upenn.edu/VCFS/22qandyou
- Tel: (215) 590-2920
- e-mail: lunny@email.chop.edu
Med Help International
- Web site: http://www.medhelp.org/
- (extensive list of support groups for disorders)
Velocardiofacial Syndrome Educational Foundation
- Web site: http://www.vcfsef.org
- Tel: (315) 464-6590
- e-mail: vcfsef@mail.upstate.edu