About UsCleft and Craniofacial Reconstruction – Resources
The Cleft and Craniofacial Program has identified numerous support groups and organizations that can be helpful for pediatric patients with cleft and craniofacial problems.
AboutFace USA
- Web site: http://www.aboutfaceusa.org/
- Tel: (888) 486-1209
- e-mail: AboutFaceUS@aol.com
About Face International
- Web site: http://www.aboutfaceinternational.org/
- Tel: (800) 665-3223
- e-mail: info@aboutfaceinternational.org
California Coalition of Cleft and Craniofacial Teams
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Web site: http://www.cleftteam.org/
Children's Craniofacial Association
- Web site: http://www.ccakids.com/
- Tel: (800) 535-3643
- e-mail: contactcca@ccakids.com
Cleft Lip & Palate Parent Support Group
- Sacramento, CA
- Contact: Gary Hori
- Tel: (916) 456-2814
Cleft Palate Foundation of America/CLEFTLINE
- Web site: http://www.cleftline.org/
- Tel: (800) 242-5338
- e-mail: info@cleftline.org
Forward Face
- Web site: http://www.forwardface.org
- Tel: (212) 684-5860
- e-mail: linda@forwardface.org (Linda Rosenbluth, executive director)
Genetic Alliance
- Web site: http://www.geneticalliance.org
- Tel: (202) 966-5557
- e-mail: info@geneticalliance.org
Let's Face It
- Web site: http://www.faceit.org
- Tel: (360) 676-7325
- e-mail: letsfaceit@faceit.org
Moebius Foundation
- Web site: http://www.moebiussyndrome.com
- Tel: (660) 834-3406
- Tel Northern CA: (510) 835-1318
- e-mail: vicki@moebiussyndrome.com
SMILES
- Web site: http://www.cleft.org
- e-mail: smiles@cleft.org
Wide Smiles
- Web site: http:// www.widesmiles.org
- Tel: (209) 942-2812
- e-mail: josmiles@yahoo.com
22qandyou Newsletter
- Web site: www.cbil.upenn.edu/VCFS/22qandyou
- Tel: (215) 590-2920
- e-mail: lunny@email.chop.edu
Med Help International
- Web site: http://www.medhelp.org/
- (extensive list of support groups for disorders)
