Many resources are available at UC Davis Children's Hospital, UC Davis Cancer Center and in your community to help your child and family through this time. Resources include information support, financial counseling and assistance, temporary housing and transportation. Please let your health-care team know what types of resources would be most helpful for you.
Below you will find links to Internet resources for pediatric cancer information, general pediatric medical information, teens with cancer, web-sites to connect and share with family and friends, and other organizations.
While the Internet is a resource that many parents and family members find helpful, not everything on it is up-to-date and accurate. If you have questions about what you read online, please ask someone on your health-care team to discuss it with you.
Pediatric cancer information sites
- National Cancer Institute
- NCI clinical trials
- NCI dictionary of cancer terms
- American Cancer Society
- Association of Cancer Online Resources
- Bone Marrow Transplant Newsletter
- Childhood Brain Tumor Foundation
- Fertile Hope
- Leukemia & Lymphoma Society
- National Brain Tumor Foundation
- National Center for Complimentary and Alternative Medicine
- National Coalition for Cancer Survivors
- National Marrow Donor Transplant Program
- UC Davis Bone Marrow Transplant Program
- UC Davis Pediatric Cancer Program
General pediatric medical information sites
Sites for teens
In partnership with Melissa's Living Legacy Foundation, a comprehensive Web site has been developed exclusively for teens with cancer. Parents, teens, family, teachers and friends are encouraged to explore its resources and offerings. Your feedback is always welcome.
Planet Cancer was conceived by Robin Blue, Paul Cox and Heidi Schultz Adams, who were in their mid-20s when they were diagnosed with cancer. Planet Cancer is a Web site community of and for young adults with cancer. It's intended to be a place to share insights, explore fears and laugh.
Group Loop is a program of The Wellness Community. It provides online support for teens with cancer, and parents as well. In addition to online support groups, Group Loop offers resources and information for teens with cancer. Group Loop offers a unique place where teens with cancer can connect with other teens and forge friendships while battling feelings of isolation, loss of control and anxiety associated with the disease.
Group Loop features:
- Online support groups: These are free, password-protected weekly groups, led by trained professionals, which support teens with cancer and their parents.
- Discussion boards: Here, teens can post messages and share with other teens who have cancer, 24 hours a day.
- My Group Loop: This is a place where teens can "get in the loop" and talk with other teens who have cancer, as well as manage their level of involvement with the site. "Information about Cancer, School and You" helps teens learn how to manage their lives when they return to school. "Relax" offers audio downloads that can help teens relax, feel better and reduce stress.
- Family room: This is a place where parents of teens with cancer can join an online support group. "Resources" provides access to other information about cancer as well as places to get help.
Camp Okizu, located in Northern California, offers a variety of camping experiences for children with cancer, their siblings and parents. Coming together with other children and families coping with the same difficulties can have a tremendously positive effect and help ease that burden a little. Special camps include those for Spanish speaking families as well as for families who have lost a child to cancer.
The Candlelighters Childhood Foundation National Office was founded in 1970 by concerned parents of children with cancer. Its mission is to provide information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
The Keaton Raphael Memorial is a nonprofit organization committed to facilitating support services for families facing childhood cancer in Northern California. The memorial was established by Robin Raphael in honor of her son, Keaton, who died of neuroblastoma in 1998.
The Lance Armstrong Foundation created the Live Strong program to educate cancer survivors, their friends and families, and health-care professionals about survivorship. Live Strong offers an opportunity to learn about topics that may affect life after treatment, and provides resources that can help in understanding the physical, emotional and practical issues that affect cancer survivors.
The Make-A-Wish Foundation helps grant the wishes of children with life-threatening medical conditions.
Last updated: 5/2007